Ever since my cardiac experience I have believed that there is a tremendous unfulfilled need for patient advocates. Traditionally the role is played by someone who is a family member or very close friend. But judgment and emotions can often get in the way. In my case, when I was conscious, I played my own advocate. But as the days and weeks wore on, as the invasive tests and needles were accompanied by fewer and fewer answers my mental stamina was waning. Luckily for me I had an incredibly strong support group with me. Allison, my wife, my mother, father and father in-law were all there to help. All strong, well-spoken and not willing to take no answer as THE answer. They stood in and stood up when I needed them the most. Unfortunately not everyone has this type of support. And even if they do, can they always make the right decision when faced with such heavy topics and choices? They were more emotionally drained than I was though they were tremendous at hiding it from me.
And so, it is with this posting that I set out to explore the formal role of patient advocacy. Last week I interviewed with the Stamford, CT hospital to volunteer within their cardiac center. I want to help manage the expectations, fears and concerns about heart surgery. I have spent 15 years managing the expectations of marketing clients which, in retrospective comparison, seems trivial. I'll keep you posted on the progress, discoveries and epiphanies I have along the way.
